Choir Concert Prize Draws

Bob and I have not been singing in the Scandinavian Choir this year.

The biggest problem is that choir is every Monday evening and I work every second Monday. Now that sounds like there was no time conflict but there sure was an energy conflict. The fact is that I really have to try and manage my energy. I do really well but one of the problems left over from my brain injury is still some ongoing fatigue. I really have to watch how I use my time and how much I do and that is not always easy. Now that I am having a lot of arthritis problems one of the things I am being told is to watch how I use my energy and to do things like use assistive devices.so here we go again! I am hoping to get better pain management soon and be able to keep on doing the things I love. Maybe we will be singing again in a month or next fall but I am not able to commit right now.

We went to the Scandinavian Choir's Christmas concert on Monday. It was a fun evening with our choir friends, enjoying some singing, dressing up a bit, food to eat and there were chance draws for prizes that the members donated.

We put tickets into every draw bag and were shocked when we won three of the draws! 

The first prize was a nice looking poinsettia plant.

Next I had my eye on an angel garden sculpture and sure enough we won that one too. I want to do more gardening both at home and at the lake so this little guy can be an inspiration. That draw also included  garden note cards and a small heart shaped picture frame.

The third prize pack include a red napkin holder, napkins, an Aloe Vera plant,  and a very pretty little necklace.
There was also a very nice set of Christmas towels for the bathroom but I am not so sure which gift pack it came with.

I love everything!

Music and Brain Injury

Last night I was reading a post on a Facebook board for Therapeutic Recreation directors asking about how best to use music to help people who have had traumatic brain injuries. I actually got kind of worked up reading the responses. I felt that people might not be recognizing the difference between the needs of people experiencing dementia and those with TBI. 

I wrote a short answer to that post but really I have a lot to say on the topic. Music is so much more than entertainment. It is part of who we are, a part of our experiences and what we remember. It is what some of us marched to, what we danced to at our weddings, and what we sang as we rocked our babies.

I have always loved music and grew up with it around me. My dad played piano and I started piano lessons when I was in grade two. I was always singing and I even met my husband when we were both members of our high school choir. Our four children all took music lessons and I can't begin to add up the hours of lessons, and concerts we took part in.

After I had the brain injury I developed a love / hate relationship with sound. Music and sounds had a horrible effect on me. I was very easily overwhelmed by movement and noise. The sound of music made me nauseous and dizzy and any kind of beat seemed to kick that constant headache I was feeling into high gear.  The more the music, the less I was able to focus and the more disjointed my memory and thinking became. I cried because I was missing music that had loved and I cried because music had the ability to incapacitate me even  further than I already was.

As time went by my physical and occupational therapists started to do things like adding sound and music to sessions and trying to get me to tolerate the music. A lot of therapy for dizziness is in the category of .. " You are not going to like this.. but we are going to take you to the point of being dizzy and then back it down a bit so we can build up your tolerance. Don't worry I will jump out of the way when you start to throw up!". Yes it is absolutely that horrible and you have to keep going back over and over for more torture, also called VRT or Vestibular Rehabilitation Therapy, if you want any chance of having a life outside your bedroom.

Gradually music, in small doses, became one of  my greatest therapy helps. I started guitar lessons and I am sure I would not have regained such full use of my hand if I had not worked so very hard to get my hand moving on that guitar.  What I did not realize at the time was what a big impact the music was having on helping me recover some of my cognitive skills, especially my memory and sequencing of tasks.

My husband and I joined a community choir and there I was - out of the house doing something new and something other than therapy sessions. It was social, it was a new kind of learning and it felt encouragingly like a normal person kind of thing to do.

 

As I began my journey toward becoming a Recreation Therapist it was arranged that I would volunteer at the Misericordia Hospital. One volunteer position was helping with the spiritual care, mainly transporting people, handing out music and singing my little heart out with the residents during services. The other main job was assisting in a group program led by a music therapist who came weekly to the attached personal care home. The music was so powerful in both programs and what joy it brought to the residents!

I must admit that I personally don't do that much with music when I am at work at the personal care home. I have lots of opportunity when I could choose to run a music programs, but I rarely do. I think I value the role of music so much that I don't think I can live up to my own standards for this kind of program. This issue is apparently something I currently need to work on. I either better get to be a better musician or get over my perfectionist tendencies when it comes to the topic. I will have to report back about my progress in the future.

 I wrote in a previous post about singing a karaoke song at an event at the Stroke Recovery Association of Manitoba. That incident was very powerful for me in terms of mental and emotional health. The song I picked from the list of choices was the Beetles song, Blackbird. I was really scared to sing publically but I did it and felt so brave. When I finished there was no missing that I had an impact on the other people there. At first I thought they didn't like my singing or that the song was a bit too much. No, what happened is I had hit on a common emotion and wish for the group. It was what brought us together. We were all longing for the freedom of  having our broken wings fly again. We wanted our broken eyes to see again. To be free.

 

Blackbird singing in the dead of night
Take these broken wings and learn to fly
All your life- You were only waiting for this moment to arise

 

Blackbird singing in the dead of night
Take these sunken eyes and learn to see
All your life- You were only waiting for this moment to be free

 

The power of music. 

 

 

 

Please note

 I was unable to find copyright info for the pictures this time. If there is a problem please let me know and I will gladly give credit or remove the pictures.

 

Keep Calm and Carry On?

I am participating in WEGO's challenge to post everyday in APRIL. WEGO is a group that empowers online communities in Health Activism to help others.

Keep Calm and Carry On. Write & create your own “Keep Calm and Carry On” poster. Try to make it about your condition! You can then go to (http://www.keepcalm-o-matic.co.uk/) and actually make an image to post to your blog. #HAWMC

 

 

I was very surprised to find out that people think of Therapeutic Recreation Facilitators as people who just lead Bingo Games and do Arts and Crafts with Old People. It is so much more...

 

One of the first appointments with my Occupational Therapist involved a discussion about what my goals for recovery were.  What were the things I needed to do and what were the things I wanted to do? What had I lost with the injury that would impact on my life?

We talked about what I needed to do to be safe. What did I need to be able to do that were activities of daily living such as managing to dress and feed myself.  Issues related to moving physically, reading and knowing what to do with numbers were at the top of my list.

 

How do you want to spend your leisure time? What helps you participate in activities with your friends and family? What will it take for you to get to go back to volunteer or paid work or allow you to care for your family?

 

I wanted to read, I wanted to cook, I wanted to shop by myself. I had a goal of being organized and remembering what I was doing. I wanted to crochet even though my left hand was NOT working well. I wanted to enjoy photography. I wanted to go camping, hiking and boating.

 

What I REALLY wanted at that point was my old life back.

 

What have I done in my journey to get my life back?

 

I worked on reading and writing with my OT

I worked on how to cook again with my OT

I helped decorate and paint my cottage walls

I wanted music so I joined a very tolerant choir and I found a guitar teacher

I went to boating, sailing events for disabled people to help with my balance

I had  a physiotherapist that made me ride a stationary bike.

I was sent to aquatic therapy where I got to exercise and play in a pool.

I went for (remarkably slow) walks with friends to learn to walk again and gain endurance.

I joined the Stroke Recovery Association and found  peers for support and to do activities with.

I attend adapted Tai Chi classes with a physiotherapist to help with balance, spasticity and strength.

I attended an outpatient group where we  played games to encourage cognitive recovery

I attended a whole lot of sessions of Mindful Meditation.to help balance my emotions

I blog... for recreation and therapy too.. and the hope of making a difference to other people.

 

I have socialized and made new friends and got a lot of support on this journey.

 

That, my friends, is what I think Therapeutic Recreation is all about. 

 

A Month of Blogging

I am off to a late start but I am going to try to do the WEGO month of blogging challenge. Wego Health is social media community that supports on-line Health Activists.

They give a blogging topic suggestion every day in April so I want to see what I can do with the topics this year.

 

Imagine your health focus or blog is getting its own theme song. Think “Eye of the Tiger” for Rocky Balboa. What would the lyrics be? What type of music would it be played to?

My song would be optimistic and encouraging and probably set to piano or acoustic guitar music but I don't have the energy today to launch into writing lyrics and a song for this blogging challenge.

 I am doing well right now. My health is pretty good, and yes I still face challenges, but I know that there is still a lot I can achieve. I am in the middle of changing the direction of my life, and not sure what is going to happen in my future, but I feel very positive.

The little community choir my husband and I sing in has picked a garden theme for our Spring Concert. One of the songs we are doing is a Choral arrangement of The Garden Song. I love singing it. It just plain makes me happy.  I also think it fits where I am in my recovery journey and it also goes with my newest focus on learning how to become a recreation therapist.

"Inch by inch, row by row, gonna make this garden grow.... "

I just keep moving inch by inch, row by row ... step by step ... challenge by challenge. Just trying to find my way.






"Garden Song"

Inch by inch, row by row, gonna make this garden grow.
All it takes is a rake and a hoe and a piece of fertile ground.
Inch by inch, row by row, Someone bless the seeds I sow.
Someone warm them from below, 'til the rain comes tumbling down.

Pulling weeds and picking stones, man is made of dreams and bones.
Feel the need to grow my own 'cause the time is close at hand.
Grain for grain, sun and rain, find my way in nature's chain,
to my body and my brain to the music from the land.

Plant your rows straight and long, thicker than with prayer and song.
Mother Earth will make you strong if you give her love and care.
Old crow watching hungrily, from his perch in yonder tree.
In my garden I'm as free as that feathered thief up there.

Inch by inch, row by row, gonna make this garden grow.
All it takes is a rake and a hoe and a piece of fertile ground.
Inch by inch, row by row, Someone bless the seeds I sow.
Someone warm them from below, 'til the rain comes tumbling down.